i feel that with all things considered i’ve been lucky especially considering other people’s experiences, but holy SHIT i’m so tired of this bullshit. i’ve complained about period & ovulation pain and soaking super plus tampons in an hour for 14 years, i’ve gone to physio with mysterious lower back pain at least 5 times in the past, and never considered that something was wrong with me because i’ve been dismissed, until february. went to hospital because i was having excruciating unbelievable pain, thought i had slipped a disc. nope! turns out it was a 7 cm ovarian cyst, pelvic inflammation. then my GP said well actually you also have PID. then i saw a urogyn and she believes i also have endometriosis, and sciatica from inflammation & endo. i started doing pelvic floor physio, she also believes i have endometriosis. key point here: i’ve been told by multiple medical professionals that my pain & symptoms are NOT CAUSED BY THE CYST ALONE. i couldn’t walk, sit up, bathe myself, go to the bathroom on my own, cook, work, go to school or drive for months. no meds at home touched the pain. now im on newer meds that help some but i cant walk for very long or stand. i’m just driving again. i was on a wait list for surgery to remove the cyst, and to excise any endo they find. got a call last week about a cancellation spot for two days later, said id take but i didn’t have my 3 month ultrasound? so i asked if i could still do it, they said no. got my ultrasound done, and the cyst is gone. of course, so the clinic called and said hey great news! the cyst is gone so we can cancel surgery! HEY WAIT A SEC LOL i’m still in fucking pain? i can’t live my life. i still want the surgery for the second half of what my procedure was for? they called when i was sleeping so it’s a bit foggy but she said that she’d call back if i couldn’t. i never got a call. but i got a call from the hospital surgery scheduling, asking if i had my ultrasound & wanting to book for the end of the month. i said yes but my cyst is gone, but i still want surgery for the endometriosis portion? the nice lady seemed to think it would be ok, but wanted to check first. she said she’d call in a bit or the next day (today) to book if it was all good. i never got a call back, i know they’re busy. but i truly honestly feel like im not going to get surgery. i’m not gonna get that spot. im so frustrated with all this back and forth and getting my hopes up. i start school in the fall and its a really intense program, attendance is taken very seriously and there’s a lot of content in each class in which there are 7 in a semester. i cannot miss school, so having surgery un the summer would be the most ideal for me so i really thought i had struck gold but i guess not. edit: I FORGOT TO MENTION the person who called me saying that my cyst is gone & we can cancel surgery, also said to me “ well the ultrasound didn’t find any endometriosis” 😃 hey so i’m pretty sure ultrasound doesn’t find endometriosis in most cases and the gold standard is LAPAROSCOPIC SURGERY WHICH I AM ASKING FOR AND WAS ALREADY GOING TO HAVE ????   submitted by   /u/sodalitedreams [link]   [comments]