I’m gonna try and make this short. I have stage IV endo. Two surgeries for it. I am chronically ill with a whole host of other issues. I’ve had bad feelings around my worsening at times seemingly life threatening symptoms. I’ve had some moderate chest pain for the last two three days (I struggle with various pains so I ignore them most of the time but noticed this one as a newer intense one) I also have cyclical nose clots/breathing problems with my cycle which I am experiencing right now. I suspect thoracic endo (not at the point of coughing up blood but the symptoms suck) my providers don’t know enough and my surgeon disagrees and isn’t very interested in trying to diagnose the potential spread. Right now it’s very late at night where I am. Had some trouble breathing, sharp chest pains and actively blowing blood clots out of my nose. It’s not like an active nose bleed but like big ol clots of fresh blood that’s somewhat solidified. At this point I’m Worried about if I’m having some sort of embolism/stroke or more specifically something like Cerebral Venous Sinus Thrombosis. Does anyone else with or without thoracic endo deal with similar symptoms? Have you ever experienced endo causing/triggering a stroke? I’m almost afraid to sleep if it gets worse and or more painful.   submitted by   /u/Flat-North-2369 [link]   [comments]