I have been dealing with this since I was 15. Every doctor I saw dismissed me. I was too young. I needed to lose weight. Nobody took me seriously. Not once. I struggled with my weight my whole life, which I now know was linked to PMOS. After moving to Canada, my doctor prescribed Mounjaro, which actually helped me reach a healthy BMI and also helped reduce inflammation in my body. Around the same time I finally got a PMOS diagnosis. But the pain and bleeding never stopped. From November 2024, I bled every single day. Every. Single. Day. I had every endometriosis symptom you can think of. Leg pain, back pain, bloating, extreme fatigue, pain that took over my entire life. I went from doctor to doctor in Ontario and every single one dismissed me. Blood tests normal. Ultrasounds normal. So apparently nothing was wrong. Cool. I tried birth control. Mirena IUD. Spironolactone, which helped a little with the excessive hair but nothing else. Nothing worked. Eventually they offered laparoscopic surgery as the so called golden solution, but even the day before the procedure they were telling me they were not expecting to find anything. The wait time was over a year. I waited anyway. In January 2026 I ended up in the ER because the pain was unbearable. They put me on Visanne to stop the bleeding. The side effects were horrible and there is even a risk of bone density loss with long term use. I took it anyway because I had no other choice. Then I got selected as one of four patients for an earlier surgery slot. May 4th. I said yes without hesitating. After the surgery my doctor called me and told me they found Stage 4 Endometriosis. She said they were not expecting it to be that advanced at my age. I was not surprised at all. I had been telling doctors for ten years that something was seriously wrong. They just never listened. They gave me two weeks off to recover. I got worse instead of better. I got a yeast infection and a UTI on top of everything else. The pain came back worse than before surgery. I now have radiating leg pain, lower back pain, hip pain, glute pain, extreme pressure on my bladder, problems with bowel movements, night sweats especially around my neck, brain fog, extreme fatigue, and yellow discharge. I am limping. I walk with a cane now. I cannot drive more than a few minutes. I cannot live a normal life. Last week I went back to the ER at the same hospital where I had my surgery. I waited 8 to 9 hours. Basic blood tests, normal. Ultrasound only showed adenomyosis. They sent me home with nothing and told me to follow up with my specialist. Today I saw my specialist. She told me they cannot remove my uterus because I have not had children yet. I am 25 years old and I am being told to have a baby I may not even want just to get proper treatment for my own body. I am in so much pain I cannot enjoy my own life. Why would I bring someone into a life I am barely getting through myself. I also asked her specifically to order a CA-125 blood test to rule out cancer. She refused. She said the chances of cancer are low. But that is exactly what they said about endometriosis. That is exactly what they said before every single thing they ended up being wrong about. My uterine lining is thicker than normal and nobody has properly explained why. On top of that I have close family members who passed away from cancer. I asked for one blood test and was told no. She referred me to a GI specialist and a chronic pain specialist. More waiting. More referrals. I am becoming depressed. I cannot work properly. I cannot go outside. I cannot do the basic things I used to do. I feel like a completely different person. I feel like I am disappearing. I do not really know what I am looking for by posting this. Maybe just to feel heard by people who actually get it.   submitted by   /u/phobiabanana [link]   [comments]