I haven’t had surgery so technically I don’t have endo. However, I have endo… my grandma and both aunts have had endo I have growth all over the outside of my uterus on the MRI and a partially obliterated pouch of Douglas. I was never told this by my first specialist I had to beg my second one to tell me what the MRI showed. I was told by my MRI it’s what they call “mild”… yeah sure. I was told I have a sensitive hymen and this is why I have issues… I have been told by my specialist I have done everything I can but then told to try more and then she will do surgery after I try for a kid and can’t get pregnant for 3-6 months. I am 23, I do have a life partner but we are not married nor wanting kids anytime soon. I bleed rectally during my period and am told it’s just stress. I started bleeding again during my period which they wanted to stop and I am ignored and told it’s just breakthrough bleeding. I was put on antidepressants and it was a hell of a month. I can barely have vowel movements anymore because my growth is on the back of my uterus next to my bowels. According to my specialist though this does not affect my bowels since I have mild Endo. My family does well with trying to understand what I’m going through but I still get the drink more water or eat better. Eating better does help me but when I am out after work I can’t make healthy foods. My dad started saying “if you can have kids” now because we had conversations of this and it’s sad to hear my family also is accepting that this could happen to me. Not to mention medical misogyny… before I knew what endo even was I went to the ER because I couldn’t walk from pain. I was told by the male doctor he couldn’t see anything and there was nothing wrong and he knew true back pain because he broke his back. I was pushed by nurses because I wasn’t walking how they wanted me to. Cherry on top the doctor told me I was going to kill myself because of the fentanyl HE was giving me. He actually did a drug test and realized I wasn’t drug seeking and then I ended up having an elevated temp. He sent me to a bigger hospital and turns out they think I had a ruptured cyst and there they suspected endo for my first time. They were never really able to do anything because the doctor did not believe me and took way too long for me to get help. I’m so sick and angry living this way. I’m embarrassed being around my friends because I was never this bad two years ago. I am a shell of myself because doctors refuse to help until I can’t function anymore.   submitted by   /u/Queasy-Rule-7800 [link]   [comments]