Two Stage-4 Excision Surgeries less than 6 months apart. Devastated.

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I am so upset. I had excision surgery less than 6 months ago in December 2025 for Stage 4 Endo removed all over my pelvic & abdominal cavity including a 9 cm endometrioma encasing my left ovary. I was unable to tolerate hormonal treatment after surgery due to adverse effects. I started having pain again mid-April. I just did an Ultrasound on Monday June 1st and found a new 5 cm endometrioma on my right ovary. For reference, my previous left endometrioma grew from 6.83 cm on September 23rd to 7.63 cm 16 days later on October 9th. 20 days after that it grew to 8 cm on October 29th and when I had surgery in December, it was 9 cm roughly the size of a large orange or almost the size of a softball. I am in complete and utter shock that it has been less than 6 months and I will require surgery again. At this point it appears I will either need to have surgery every 6 months for large endometriomas or I need to have my ovaries removed completely. This is absolutely insane. I cannot even think straight. I have truly done everything “right” that I was advised to do. In October I completely changed my diet to an anti-inflammatory / endometriosis focused diet; nothing processed, pescatarian, no red meat or chicken, no dairy, no animal products, and no sugar (only allowing organic maple syrup or coconut sugar to sweeten anything). I have been taking a plethora (hundreds of dollars per month) of vitamins and supplements recommended by my surgeon including but not limited to: Quercetin with Bromelain, N-acetylcysteine (NAC), Resveratrol with Quercetin, Curcumin (Turmeric), Omega-3 EPA/DHA, Magnesium, Vitamin ADK, Probiotics, and MORE. There is literally nothing else I could have done besides take the hormonal medication I could not tolerate. I am devastated and have no idea what to do. I assume this endometrioma will be fast growing like my previous one considering it has essentially grown 1 cm every month since my last surgery in December. I have no idea what to do. I cannot get surgery every 6 months until I hit menopause in several decades and I have not been able to tolerate the hormonal medication so is my only option TRULY just removing my ovaries? I am 29 years old. This is unbelievable. Also, does anyone recommend any Endometriosis charity foundations specifically? I am a content creator and I want to be open about this disease with my community to not only spread awareness of this unforgiving disease but also contribute and promote an Endo charity giving my community the option to help if they want.   submitted by   /u/Idk-what-username123 [link]   [comments]